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FOR PATIENTS

Know one knows how lonely it can feel for a sufferer of Fanconi Anaemia and their family better than the very people experiencing the effects of the disease. At Fanconi Anaemia Australia, it is our goal to build a community of families who can support each other through the good and the bad times.

Fanconi Anaemia is a very rare disorder, and families afflicted by the disease will from time to time need support in understanding what they are facing.

If you suffer with or know somebody suffering with Fanconi Anaemia, please encourage them to make contact with us so we can help them find security among friends who truly understand what they are going through.

CHECK THESE OUT!

Fanconi camp 2008

An australian first camp for suffers of Fanconi Anaemia is being planned in September 2008. Keep an eye out for news as this camp develops.

 

LATEST NEWS

16 October, 2007
New fundraising merchandise availabe for purchase - Fanconi key rings $4.00 each. >>

 
 

12 October, 2007
Dr Garry Taylor joins the board of Fanconi Anaemia Australia Ltd as a Company Director. >>

 
  6 October, 2007
New FA Day website launched featuring videos of Australian FA patients sharing their stories. >>
 
 

 

 
  RESEARCH & MEDICAL
UPDATES
 
  26 October, 2007
Resarch Article on cancer risk for FA carriers (eg. parents and other relatives). >>
 
  20 October, 2007
Letter from Dr. Singh (New York) making a strong case for the need for FA patients to have HPV vaccine (Gardasil) in the interest of cancer prevention. >>
 
     
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