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LATEST NEWS

New Office, phone & fax numbers

Fanconi Anaemia Australia Ltd has now moved office and changed its telephone and fax numbers.

The new address and contact details are :
Loan Market office
Suite 3, 797 Port Road
Woodville SA 5011

Tel: 08 8244 5350
Fax: 08 8445 8005

FA Courier available for download here

FA Courier is published by Fanconi Anemia Research Fund, Inc in the the United States of America to keep families informed about current research projects and clinical trials and to encourage them to contribute to the urgent need for research materials necessary to these projects.

Though some information and request for materials are only relevant in the US, the FA Courier provides good reading for anyone interested in current research into Fanconi Anaemia.

Download FA courier by clicking here >>

FA Day website launched

Fanconi Anaemia Day website www.faday.org.au has now been launched to promote FA day on October 29. The site features basic, easy to understand information about the day and disease Fanconi Anaemia.

The site also includes links for the public to make a donation or purchase a fanconi key ring available for $4 each.

The highlight of the site is the videos link which shows short YouTube style videos of patients with Fanconi Anaemia sharing their experiences with the disorder.

New Donations page now active

A new donations page has now been activated on this site. Click on Donations from the menu above to access the online form to make a donation and to purchase merchandise such as the new Fanconi key ring.

New Company Director appointed

We are pleased to announce the appointment of a new company director, Dr Garry Taylor.
Garry has replaced Mr David Campbell who stepped down from his role earlier this month.

Dr Garry Taylor is the Chief Executive Officer of Adelaide Unicare, a controlled entity of the University of Adelaide which operates a number of General Medical Practices in South Australia.

Dr Taylor's extensive career has also included senior executive roles with Gribbles Pathology, Benson Radiology & Maine Healthcare.

Fanconi key rings for sale

In preparation for FA Day - October 29, key rings are being manufactured for the purpose of fund raising on and around Fanconi Anaemia Day. Due to limited funds this year, we have ordered 1,000 key rings which will be made available to FA families for sale among their family, friends & work mates to raise funds for Fanconi Anaemia Day.

Families interested in selling the key rings are to register their interest including the amount they anticipate selling and whether they will require any additional aids such as display boxes or posters, etc.

The key rings cost $4.00 each to purchase. Families fundraising for the organisation can receive their orders on consignment and all key rings not sold are to be returned to Fanconi Anaemia Australia Ltd.

To register your interest, please email alan@fanconi.org.au or telephone 0438 008 751.

New FA camp planned

In September 2008 we will be holding our first annual Fanconi camp here in South Australia. The camp will cater for the entire family with activities suited for all ages. It is scheduled to be held at Mylor Baptist Camp in the picturesque Adelaide hills.

More information will be released closer to the camp date.

Charity structure changes

Effective from the beginning of September 2008 FA Australia Incorporated ceased it's physical operations and is now replaced by Fanconi Anaemia Australia Ltd. This new entity also comes with a new charity endorsement cateogory which permits wider support to FA families.

 

 

 

LATEST NEWS

16 October, 2007
New fundraising merchandise availabe for purchase - Fanconi key rings $4.00 each. >>

 
 

12 October, 2007
Dr Garry Taylor joins the board of Fanconi Anaemia Australia Ltd as a Company Director. >>

 
  6 October, 2007
New FA Day website launched featuring videos of Australian FA patients sharing their stories. >>
 
 

 

 
  RESEARCH & MEDICAL
UPDATES
 
  26 October, 2007
Resarch Article on cancer risk for FA carriers (eg. parents and other relatives). >>
 
  20 October, 2007
Letter from Dr. Singh (New York) making a strong case for the need for FA patients to have HPV vaccine (Gardasil) in the interest of cancer prevention. >>
 
     
     
     
     
     
     
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