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ABOUT US

Fanconi Anaemia Australia Ltd provides a variety of support services to families suffering Fanconi Anaemia within Australia, in addition to providing broad-based education to treating doctors, families, carers and the general public.

HIstory

Fanconi Anaemia Australia was first establsihed in February 2006 by Alan Howard-Jones as an Incorporated Association (FA Australia Incorporated).

Alan's wife Charisse is a sufferer of Fanconi Anaemia, and has been heavily involved over the years supporting other families with Fanconi Anaemia via the internet support groups provided by Fanconi Anemia Research Fund in the USA.

Following their attending Camp Sunshine in Maine USA in 2005, Alan founded the organisation to provide support to Australian families, and to assist in increasing public awareness of the disorder.

The organisation was restructured in 2007 as a Public company called Fanconi Anaemia Australia Ltd.

 

 

MORE INORMATION
 

LATEST NEWS

16 October, 2007
New fundraising merchandise availabe for purchase - Fanconi key rings $4.00 each. >>

  
 

12 October, 2007
Dr Garry Taylor joins the board of Fanconi Anaemia Australia Ltd as a Company Director. >>

  
  6 October, 2007
New FA Day website launched featuring videos of Australian FA patients sharing their stories. >>		  
 

 

  
  RESEARCH & MEDICAL
UPDATES		  
  26 October, 2007
Resarch Article on cancer risk for FA carriers (eg. parents and other relatives). >>		  
  20 October, 2007
Letter from Dr. Singh (New York) making a strong case for the need for FA patients to have HPV vaccine (Gardasil) in the interest of cancer prevention. >>		  
     
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